Hey there, I’m Fil
My FND Diagnosis put an end to 40 years of my symptoms being unknown. It’s not solved the problem, but I’ve picked up a few tricks along the way to stay in the game as much as I can without crashing myself.
My symptoms include neuropathy in the feet and hands, body temperature dysregulation, spasms and tremors, cognitive decline, short-term memory loss, digestive issues, tinnitus, hearing loss, rhinitis, eczema, vocal chord spasms, loss of voice (and I think that’s the lot!)… hang on, dizziness, vertigo … (now that’s the lot, I think…)
And then I differentiate those from my mental health symptoms (anxiety, panic attacks etc). And some symptoms cross the two worlds.
Over the years I’ve spent a lot of time and money having diagnostics done, all to have FND as a diagnosis. I’ve seen my symptoms worsen over time, requiring me to adapt and adapt my career, relationships, activities and expectations.
What this boils down to is a life experience, a set of skills and a few resources on offer for people who are in the same or similar boat. In my view, these services could also benefit people in therapy for ACC sensitive claims (I’m one too - but not yet a SCS provider), battling long COVID, living with fibromyalgia and/or CFS/ME.
I’ve tried to keep pricing down and if you’d like me to try and become an accredited provider for various ACC or government services, please let me know!